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Similar Searches disorders rare polycythemia polycytemia clotting cythemia rare diseases national organization national organisation national association for rubra vera rare disorders national organization for rare disorders national organization of rare disorders rare blood disorders rare skin disorders national organization rare disorders rare brain disorders rare mental disorders rare eye disorders national organization for rare disorders inc rare eating disorders rare psychological disorders national association of rare disorders rare medical disorders national organization of rare disorders inc rare sleep disorders		Win a Cash Prize Today This promotion won't last long so start surfing around because somewhere on this site we've hidden a cash prize. That's right, all you need to do is search around our site, find the prize, enter your details and wait for the mail. It's that simple and for many of our past winners, it was great fun discovering new things, reading the latest news and catching up on trends related to our hobbies. searchuk.co.uk is a search site dedicated to helping users find what they are looking for. We specialize in the UK market and offer the most up-to-date results on the net. Companies that purchase or sell products and services in the UK can be found in the searchuk.co.uk directory which currently contains more than 2 million listings.   Top>Health>Conditions and Diseases>Rare Disorders> > Agnosia > Aicardi Syndrome > Alstrom Syndrome > Barth Syndrome > Cerebrocostomandibular Syndrome > Cleidocranial Dysplasia > Cystinosis > Degos > Erythromelalgia > Jacobsen Syndrome > Melorheostosis > Moyamoya > Ollier Disease > Pemphigoid > Pemphigus > Phenylketonuria > Pierre Robin Syndrome > Progeria > Rubinstein-Taybi Syndrome > Tyrosinemia > VATER Syndrome > Wegener's Granulomatosis 1.  National Organization for Rare Disorders (NORD) Voluntary health organisations dedicated to providing information on the prevention, treatment, and cure of rare "orphan diseases. www.rarediseases.org 2.  Rare disease - Wikipedia, the free encyclopedia Rare diseases, including those of genetic origin, are life-threatening or ... "OrphaNews Europe : the newsletter of the Rare Disease Task Force" ... en.wikipedia.org 3.  The National Alliance for people with rare diseases Rare Disease UK is an alliance of key stakeholders brought together to develop a ... Rare Disease UK plans to build on the existing infrastructure and expertise, and ... www.raredisease.org.uk Cherubs A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia. (http://www.cherubs-cdh.org) Contact a Family Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK. (http://www.cafamily.org.uk) Fibrosing Mediastinitis The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum. (http://www.fibrosingmediastinitis.com) Fibrous Dysplasia Support Online For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism. (http://members.cox.net/fdsupport/index.html) Human Growth Foundation Information about growth-related disorders through education, research, and advocacy. Member driven organization. (http://www.hgfound.org/) International Rare Disease Support Network A community providing more than a 1000 different links to support groups for the people of all nations. (http://www.raredisorders.com) Kindler Syndrome An article and case study of this rare disease. Includes links. (http://digilander.libero.it/camdic/KINDLER.html) Lymphangiomatosis and Gorham's Vanishing Bone Disease Provides general informtion and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group. (http://www.gorhams.dk) National Organization for Rare Disorders, Inc. Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching. (http://www.rarediseases.org/) Nomid /Cinca Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email support group at eGroups. (http://pweb.netcom.com/~jkbarton/nomid/Html/nomid_home_page.) Office of Rare Diseases Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups. (http://rarediseases.info.nih.gov/ord/) Tetrahydrobiopterin Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency. 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